Dementia, Music, and Talking with God

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Last Thursday Mim and I took a day-trip to Lake Geneva for Rainbow Hospice Care’s 14th annual “End-of Life Conference.” The theme this year was “A Focus on Dementia.” The whole conference was excellent! This is what continuing education is like for people in our business – assisted living.

The morning keynote speaker was Teepa Snow who helped us understand the functional limitations of individuals in each of the seven stages of dementia. She taught us how we can be most helpful when we try to provide care for residents in these stages, as well as how to care for their family members. As Teepa’s speaking and actions evolved into the typical behavior of a person in each stage of dementia, a lightbulb went on in our minds. So that’s why… Now I understand… Behaviors of many past residents came to mind.

The closing keynote speaker was Jolene Brackey, the author of Creating Moments of Joy. Throughout the past 15 years that Mim and I have been doing assisted living in our home, we have given away many copies of her book. The majority of people we have cared for have had some degree of dementia, and this book provides practical examples of how to provide “moments of joy” for these individuals. We’ve made the book required reading for anyone who works with us, and we routinely give the book to the families of our residents with dementia.

fullsizeoutput_22a6Jolene Brackey didn’t disappoint us as a speaker. At the end of a long day of learning for all of us at the conference, she provided us moments of joy as she told us stories and gave us practical examples for sharing joy freely with our residents.

One of the afternoon Breakout Sessions that I found particularly interesting was “Music and Memory.” From my own experience, I’ve known that music still communicates with many people who have very advanced dementia. I used to play the piano monthly for a senior respite organization in a nearby town. One of their clients was a man in his 50s who had early onset Alzheimer’s Disease. He would sit in the group all day long without saying a word. But when it came time for the sing-along, he would join in and sing enthusiastically, remembering all the words of the golden oldies and hymns I played for them.

fullsizeoutput_22a8The “Music and Memory” Breakout Session was an update on the progress of a non-profit organization called “Music & Memory.” The vision of “Music & Memory” is to provide the means for caregiving organizations to give an iPod with a personalized playlist for each person in their care. The playlist includes the favorite songs of each individual, often the popular hits of their high school years. Research has shown that people, even in the advanced stages of dementia, exhibit signs of happiness when they are listening to their favorite music.

In this session, we were asked to pair up with another session participant to learn about their favorite music – something we would need to do with a resident or their family if we were to try to create a personalized playlist. My partner was a college student, whose favorite music type is heavy metal, and whose favorite band is Metallica. In contrast, I’m nearly 70 and my favorite music type is sacred piano, and one of my favorite performers is Steve Hall. Our music vocabularies had almost no overlap. If I had to prepare a playlist of her favorites, I would really struggle. But I enjoyed talking with her and learning a little about heavy metal music. I now have a little better understanding of the incredible breadth of music that can speak to our souls.

Thinking about the power of music is something I’ve been doing for several months. As you may know from previous blog posts, I’m writing a book with the current working title of Talking with God through Music. I’ve actually been working on this book for over a year. Originally I intended it to be a daily devotional with personal reflections on 365 of my favorite hymns. I started writing the book in late 2016, and I started the project by writing reflections on hymns of thanksgiving. Then I worked on Christmas Carols. The more I wrote, and the more I organized my favorite hymns into different categories to figure out where in the year they should be placed in the book, I decided it made sense to start the book with a month’s worth of hymns based on Psalms – the hymn book of the Bible. I finished writing the Psalm section of my book the last time I was at our Christmas Mountain timeshare, a few weeks ago.

Now that I’ve written 31 reflections on Psalm-based hymns, I’ve decided to publish this collection of hymns and reflections as a separate book, Talking with God through Music: Reflections on My Favorite Psalm-Based Hymns. My plan is to use this 68-page book as a prototype for the larger book. I experimented with a lot of new things in writing this book, and I want to find out if all my extra homework is worth the effort. I did quite a bit of research into each hymn to be able to provide information about the author, the composer, and the historical context, along with my personal reasons for choosing the hymn as one of my favorites. I also learned to use music-writing software to create a melody line for each hymn so that readers can actually see the music and lyrics next to my paragraphs to help them remember what the hymn sounds like – to be able to sing it in their mind or even out loud.

I hope that readers will give me feedback on the prototype that will help me tweak the style and format for the larger book. My goal for the final book is to help readers discover how music, hymns in particular, can enrich their ability to talk with God. Music is the language of the soul. As St. Augustine said more than 1500 years ago, “Whoever sings prays twice.” And, as we were reminded last Thursday, music is an amazing means of communication for everyone, regardless of their cognitive state.

fullsizeoutput_22a7If you would like a copy of Talking with God through Music: Reflections on My Favorite Psalm-Based Hymns, let me know. I’ll be happy to send you one. I’d really appreciate your feedback on the concept and structure of the book before I put together my next book. My goal is to submit the text of the prototype to the publisher this week, and to receive the printed copies within a week or two. I’ll write another blog post when I have the books in hand.

 

5 responses to “Dementia, Music, and Talking with God”

  1. Hi Marion, I am a friend of Catherine Puisto and she forwarded your blog to me…very timely as we are starting hospice care for my 95 year old Mom who is at Shorehaven in Oconomowoc, WI. She is in her final stage of Alzheimers.

    I first saw your name when I was reading Justice, your church’s Lent Devotional. (Catherine sent me a copy). You are so talented and I look forward to a copy of your “Talking with God Through Music”. when available. I teach “Ageless Grace” which is a movement and exercise program done in a chair. We play music from the residents era that enlightens them…yes, Music is very powerful!!

    How wonderful you heard Teepa Snow at your conference. She is amazing and all that she has done for Dementia. Hopefully research will find a way to help all of us with this debilitating disease.

    I look forward to reading more of your blogs and sharing with my sisters and others.

    Thank you, Barb Ehrgott
    Bradenton, FL

    1. Thanks for your comments, Barb. I’d like to hear more about your “Ageless Grace” program. Please email me directly (MarianKorth@gmail.com) with your mailing address, and I’ll send you my book as soon as I get it from the publisher.

  2. Michelle Hauge Avatar
    Michelle Hauge

    Good Morning,

    I’m glad you’re at the point of publishing your first reflections!

    I forwarded Creating Moments of Joy to a good friend of mine who is caring for her mother with Alzheimers.

    The kids have been writing up summaries of our trip, and I will be sending copies of them to you shortly. What a significant event it was in our lives!

    Love and blessings,

    Michelle

    ________________________________

  3. Hi Marian,
    What a wonderful idea to write about talking to God through music. I often think of songs when I’m reading my morning devotions or mediating. I would LOVE a copy of your book. Just let me know when and how much it is!

    Thanks,
    Pam

    1. Thanks, Pam. I’ll be happy to send you a book when I receive them. I met my goal and submitted the text to the publisher yesterday. Since my “Psalm-based Hymns” book is a prototype for the larger book I’m hoping to write this year, I’m planning to give away copies of the smaller book, hopefully in exchange for helpful feedback. Please email me (MarianKorth@gmail.com) with your mailing address so I can send you the book. Thanks.

      Marian

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